One year later...

It has been exactly one year since we given the news about Caillian's condition. And as heartbreaking as it is, we continue to have a positive outlook about his future and take each day and each milestone as it comes. Since my last post we were given the news that he was seizure free since being on the new medication, Viagabatrin. In the past few months we have noticed that they have returned however they are nothing like they used to be and his medications have been adjusted accordingly given that he now weighs more. Since August he has been released from his cardiologist and continues to progress developmentally each and every day with the help of his PT and OT. He also sees his Ophthalmologist every three months to check for any vision loss. So far so good, he has passed his vision tests with flying colors. We couldn't be more proud of him for the progress that he has made and continues to make. He continues to show us every day that he is a fighter and nothing is going to stop him. I know that this update is long overdue and I promise to keep it updated more frequently than I have done in the past.